Links
Medical Information
- CML Alliance provides access to current information concerning TKI therapy in ph+CML
- National Cancer Research Network New site with information on clinical trials etc... established by the Dept. of Health for the NHS in the UK. The Chronic Myeloid Leukaemia Working Group section created by Steve O'Brien in very much under construction still and promises to be very good indeed. You can contact Dr O'Brien by scrolling to the bottom of the page and clicking on his name.
- Cancer World If you are a member of the public and have been affected by cancer please visit the cancer world website by using the links below
- Cure Today Magazine US based print and online newsletter/magazine (hard copy sent free to US cancer patients and cancer organisations)with lots of links, good articles and information for all types of cancer. Certainly worth a browse.
- 'ecancermedicalscience' Online Journal The journal from the European Institute of Oncology in Milan. With Open Access publishing a reality and an urgent need for improved cancer communications, ecancermedicalscience fits the 21st century bill for a cancer journal. We see the future as free; free to publish, free to read and free to comment. Thanks to online technology and a community poised to podcast and blog - ecancermedicalscience offers a multimedia and multidisciplinary approach to cancer.
- European School Of Oncology The European School of Oncology (ESO) has created the first independent cancer website for journalists. It features the latest oncology news from leading peer reviewed journals and trusted Institutions.We want to provide the media with accurate information about the latest cancer treatments, lifestyle advice and developments in research. We believe that a better informed media creates a better informed public.If you work in the media and have any questions about cancer, email us at mediacentre@esoncology.org The Cancer Media Centre is a service for news journalists.
- CML Medical Tracker CML Medical Tracker is a health tool and educational resource developed by the L&L; Society of USA for people living with chronic myeloid leukemia (CML)
- Haematology ASH site [American Society of Haematology]
- Medscape Medscape requires registration but this is free.
- Healthology
- Kanzius Cancer Research Non-invasive Targeted Radio-frequency Cancer Treatment Non-invasive Targeted Radiofrequency Cancer Treatment. Destroying Cancer Cells with Radio Waves. Treating cancer more effectively and without the debilitating side effects associated with current therapies were the goals of John Kanzius when he began; the result is a novel radio wave generator that warms nanoparticles attached to or absorbed within cancer cells. The warming kills the cancer cells with little or no damage to nearby cells, thus dramatically reducing or eliminating side effects. And, the treatment is non-invasive without requiring surgery or multiple insertions of probes.
- Leukemia and Lymphoma Society The Leukemia & Lymphoma Society is the world's largest voluntary health organization dedicated to funding blood cancer research, education, and patient services. The Society's mission: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families.
Holistic Approach
- Bristol Cancer Centre
- The British Acupuncture Council
- The British Homeopathic Association
- The British Herbal Medicine Association
- National Federation of Spiritual Healers
- The British Medical Acupuncture Society
- International Society of Professional Aromatherapists
- British Complementary Medicine Association
- Institute for Complementary Medicine
Patient Groups
- ACLT bone marrow registry Since their establishment nearly 12 years ago, the ACLT have increased the number of black and mixed raced potential donors on the UK bone marrow list from 580 to 25,000 as well as recruiting thousands of ethnic minorities onto the list. Their aim is to reach at least 60,000.
- CML Advocates Network CML Advocates Network is a global network of support groups for Chronic Myeloid Leukemia (CML) aims to support, by sharing best practice, CML patient groups across the world. This site is divided into two parts: a public and a member-only area.
- Yorkshire CML Patients Suppport Group This local group was started by patients treated in the Yorkshire region of the UK and is open to all CML patients and/or carers who live in Yorkshire and surrounding regions. The group organises regular meetings every couple of months. For details of location and dates of meetings please visit the group website.
- CML Foundation The CML Foundation unifies and brings the voice of survivors to the management of Chronic Myelogenous Leukemia and the improvement of care and quality of life issues through patient support, education, research and advocacy.
- Children with CML Support Group Jayne Lister set up this online support group specifically for children and young people who have been diagnosed with Ph+ CML. This site has a discussion forum and diary section for the children and young people affected as well as informatin about Ph+ CML and provides a much needed resource, not only for the children, but also for their parents and carers.
- the Australia TalkBloodChat Website Australia TalkBloodChat has launched a new website for young adults,really interactive / great sites and lots of hints and information Rgister at
- Jerry's Site Jerry Mayfield's site - Read Jerry's Diary all about the BMS drug'Sprycel' and plenty of Glivec info and history. Excellent chat facility also with different message boards for Glivec;Sprycel and AMN107, now known as Tasigna.
- Asian CML Support Group Asian CML support Group run by Anjana and Roy who are based in Singapore. Excellent for asking technical questions especially about blood tests etc. Very supportive and inclusive atmosphere amongst the members.You will need to apply to become a member.
- Acor.org Association of Online Cancer Resources.Go directly to CML list
- Leukemia and Lymphoma Society The US based Leukemia & Lymphoma Society is the world's largest voluntary health organization dedicated to funding blood cancer research, education, and patient services. The Society's mission: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families.
- Yahoo Groups You can join CML Group chats mainly US
- Jan Geissler runs this CML patient support group, published in German.
- Giora Sharf's Isreali Support Group. Published in Herbew
- CMLHope.com. Rob Neill runs this online International Network For CML Patients
National Organisations
- Cancer Care Society (CARE) Offers emotional and practical support through a network of support groups throughout the country. Email: info@cancercaresociety.org
- CancerLink Aims to bring people together to share their experiences, and offer support. Email: cancerlink@cancerlink.org.uk
- Macmillan Cancer Support Provides support for people with cancer and their families, with specialist information, treatment and care. Email: information_line@macmillan.org
- Leukaemia CARE Society Offers a 'listening ear' service for patients with luekaemia, available 24 hours a day via the CAREline: 0800 169 6680. Email: enquiries@leukaemiacare.org.uk.
- Leukaemia Research Fund Provides information on all types of leukaemia and publishes a wide range of booklets. Email: info@lrf.org.uk
- Anthony Nolan Bone Marrow Trust
- pamelanorthcottfund.org.uk Represents, supports and advises individuals on appealing for exceptional treatment funding from their PCT
- Carers Association
- National Cancer Institute
- Cancer Research UK
- Department for Work and Benefits
- Department of Health
Children's Charities
Campaigns
- Be NICE to cancer patients petition A representative of the CML Support Group said 'Patients are angry, frightened and very frustrated by the provisional recommendation by the NICE appraisal committee- a recommendation that seems to us to have much more to do with cost cutting than with a rational appraisal of two highly effective and innovative therapies. If the recommendation is upheld, and NHS funding of these therapies is refused in cases of imatinib intolerance, it will undoubtedly cost lives. It is a shocking prospect that UK citizens, who prove to be intolerant to standard dose imatinib (Glivec) will be denied access to such effective and life-saving alternatives.
- Sign the Call to Action Against Rare Cancers The Call to Action was launched on 24 June 2009 as part of the European Action Against Rare Cancers campaign. It is an international petition that urges policy-makers and all other relevant stakeholders to give high priority to quality treatment and care for patients with rare cancers.
- FACE is an initiative of ECPC and is centred in the European Parliament with over 60 MEP's as members.FACE member MEP's will help patient advocates put pressure on policy-makers and all other relevant stakeholders to give high priority to quality treatment and care for patients with cancer.
- The European LeukemiaNet is an EU-funded organisation of physicians, scientists and patients with interest in leukemia. It aims to improve the treatment and knowledge about Leukemia in Europe and spread excellence. The website delivers information for physicians, patients (e.g. patient organisations in Europe), ongoing clinical trials and further information about the disease.