Registered Charity 1114037
Blogs
Joanna's Caringbridge Journal
I was diagnosed with CML in August 2010. I was invited to take part in the Spirit 2 trial and randomised to dasatinib. Initally all went well However, in March 2011, my BCR-ABL levels had started to rise. This could be a blip, or could indicate a problem with the drug and my illness. My consultant, Dr Evely, (based at Bristol Haemotology and oncology hospital) was quickly on the case, consulting with others nationally and testing for a mutation. Subsequently we found that I had the T315i mutation - a mutation resistant to the 1st and 2nd line available drugs. This journal will carry on with the story. I value your comments and feed-back....more
Harvey's leukaemia blog
Harvey was diagnosed with CML in March 2001 aged 30 and with a young family. Read his story (and others) and his fundraising activities on his new blog here: leukaemiacharity.wordpress.com
Michael Polson
I have decided to keep a record of my time, whilst being treated for Chronic Myeloid Leukaemia. I have found other peoples journals a great source of information, and this I hope will serve others who follow down this path. It will also allow my nearest and dearest easy access to what's going on with my treatment.. ... read more
Rio Williams
Welcome to my website all to do with CML ( Chronic Myeloid Leukaemia ). It has been created to keep friends and family updated about my treatment. My Story is the introduction to my journey through treatment. Feel free to read the latest in the journal, view the photo gallery, and leave comments in the guestbook ...more
Susan Leigh
I was diagnosed with chronic myeloid leukaemia in March 2005.I have been on Glivec and Sprycel and am intolerant to both. I have a sibling match so I am having a 'mini' transplant in October 2007. My transplant will be at the Royal Free hospital, London more ...
Skip Duffie
This is Skip's story of living with CML. Diagnosed in 1978 more ...
Rob Margel
Rob was diagnosed with CML in December 2006. He has created a space to share his Living with CML Story ...more
David Cox
David's Journey with CML Dx: 1 November 2005; WBC 216.4, Hb 11.4, Plt 650, PCR 14.77% t(9;22)(q34;q11) - b3a2 - HLA: A 01,02; B 44,45; C 06,16; DRB1 4,7; DQ 2,3 EVERYONE WITH CHRONIC MYELOID LEUKEMIA HAS THEIR STORY... THIS IS MINE more ...
Max Horwood
21st July 2006: I am officially today 1 year post BMT! Since my last update, I have enjoyed a school trip to Germany which was great fun, apart from the work of course! James has been to Belgium, once again with the school and I don't think he got into any trouble, but I won't say too much yet. The last few days at school have been good, especially yesterday's boarders' trip followed by a barbeque in the evening in South House gardens. Returned home today and realised that I am quite tired. more ...
Aaron Bullingham
We first found out that Aaron had Leukaemia on 25th April 2003. We noticed that he was extremely tired all the time and had started to have night sweats. Because he had always been such a healthy boy we didn't really think too much about it but decided to take him to the GP anyway. We got him in that same day and the Dr gave him the once over, a full examination. On examination the Dr found that he had some hardness in the spleen area more ...
David Morton
I was admitted to the Royal Free Hospital on 25th January 2006 to have a full BMT and have set up this page to let people know how my treatment is progressing and to save my mother repeating the same story a million times. I was diagosed with CML in July 2004 and was then lucky enough to be diagnosed with MS in August 2005. I am having a BMT in order to cure both diseases. more ...
Diana Lindberg
A story of love and great bravery in the face of overwhelming odds. Di fought CML with strength, dignity and optimism. Her strong religious faith helped her through her transplant which successfully dealt with her CML. The shock of her subsequent diagnosis of an aggressive form of bone Sarcoma was devastating for all that knew and loved her. Di's diary is written with a gererosity of spirit and great humour and will always remain an integral part of this site. Her love for her family gave her the determination to endure what for some of us would be the unendurable. We are grateful to Di's husband Tim for allowing us to continue to share their deeply moving story more ...
Elizabeth Rees
Elizabeth's story of her diagnosis with CML and her subsequent adventures with Glivec, MDS, secondary AML, high dose chemo and on to her mini allograft. more ...
Jerry Mayfield
Jerry's Diary A patient's first hand experience of Phase 1 trial on the BMS inhibitor. Also a link to Jerry's support group website. more ...
Martyn Coyne
On the 13th November 2005 I was admitted to Kings College Hospital for the start of my stem cell transplant more ...
Matt Sinclair
On 19th October 2005 I was first diagnosed with Chronic Myeloid Leukaemia. It's much easier to write the words than to say it, not because it upsets me but because I don't feel like I have anything wrong with me. more ...
Miltcentral
On 22nd November 2004, Milton was diagnosed with acute lymphoblastic leukaemia."I want to offer a positive approach to dealing with serious diseases like mine. I truly believe that our attitude, strength & love can heal us. There is too much shame, taboo, silence & fear surrounding cancer and that must be changed. I have no fear, resentment, anger or self-pity about my leukaemia ' to get through this, those emotions must be discarded." more ...
Sandy's Diary
Mini allograft and Glivec a new form of SCT. This form of transplant uses low intensity chemotherapy to suppress the immune system in readiness to accept the donor stem cells. TBI (total body irradiation)is not used. more ...
CML Diaries
If you keep a diary, journal or blog that you would like featured on this site please contact us via this page