Just a quick line on the update. I've just had my 3rd vaccine this morning. Nothing particularly interesting to report asuch - I think it is a little early to draw any conclusions with respect to PCRs. My arms aren't that sore actually, and probably tomorrow won't notice anything at all.
My PCR has dropped from 0.096% to 0.047% which i'm pleased with, although this had dropped before I started on the trial, so I can't attribute the drop to the vaccine trial!
I think that's about all for now. If you have specific questions, please let me know and i'll do my best to answer them. I understand there's 6 people enrolled in the WIN trial at Hammersmith.
Bryan.
​Thanks Bryan, good to hear that the actual vaccine is not too painfull an experience. When reading the protocol and the description of how it was actually delivered it sounded a bit scary;o)
Good news on your PCR- even though it is obviously not due to the vaccine it is still very good news.
What exactly is the protocol? i.e when is your next vaccine and when do they evaluate your response?
Best,
Sandy
“Imatinib tells us we are on the right track but we can't be complacent, we can't be patient. We must seize this momentum to reach the finish line of curing cancer." Brian Druker, MD
Hi Bryan
Thought of you on the 4th Jan. Pleased to hear the vaccination programme is going OK and will keep my fingers crossed for you that they are having the desired effect. I guess you'll get some idea soon when they do the hand biopsy thing.
I have just discovered that I am one of the 66% of the population without the necessary gene. This obviously means no vaccines for me, but I have agreed to act as "control" so it will be back and forth to the hospital for bloodletting but no BMB and no leukephrensis. Not too sure how I feel - disappointed that I don't get the opportunity to try this new treatment and relieved at the same time that I'm not stepping off the cliff into unknown territory - although you did much to allay my fears with your posts on this site. Thank you so much for that - also they may encourage others reading this to volunteer for the trial.
Do keep us all posted
With much luck for successful results,
best wishes
Chrissie
