Professor Copeland, the Chair of the UK CML Working Group, has contacted CMLSg to say that she is starting to think about the programme for the 2016 UK Patient Day, which will be held in Manchester on 24th September - the venue soon to be confirmed.
I wondered if those of you who attended the 2015 London meeting, or those who plan to attend this years meeting, would give some feedback about what you feel worked well at the 2015 meeting, as well as any ideas for additional topics that could realistically be included for this years meeting.
2015 meeting:
- Was the level of content sufficient?
- Webcasting the day... was this helpful
- Audience participation via mobile phones- was this helpful/enjoyable?
What topics would you like to see repeated or ideas for new topics to be included this year.... which might include the following:
- Understanding molecular testing/qPCR testing- would you like to see this session repeated?
- Available data from Destiny and the various EU stopping trials?
- Cancer Drugs Fund and access to 2nd Generation TKIs in England
- Access to 2GTKIs in Wales/Scotland/N.Ireland- how does it differ from England?
- Issues surrounding the introductions of Generic imatinib- the new brands? How do they differ- if at all- from Glivec.
- Individual patient stories - should this session be repeated? was it popular/helpful?
- Your ideas for specific breakout sessions? Pregnancy/fertility etc./ Carers/family session......? Setting up local face to face patient group meetings?
Other ideas?
Thanks for your help,
Sandy