Hi - I am Ben and am a 50 year ex-Pom living in Australia - there doesn't seem to be a support group like this in Oz so I decided to hang out here - hope that's OK!
I was diagnosed in March 2016 and have recently commenced treatment on Nilotinib 300mg twice daily - day 8 today. I am on a clinical trial called the Pinnacle Trial if there are any other Pinnacle folk here.
I had my first post treatment blood today and my lipase has gone up quite a bit but I don't have any significant symptoms. Maybe a little mild abdominal discomfort but other than that I have been pretty much fine.
Has anyone else had any experience with this? I understand it is a side effect of Nilotinib but not entirely sure what to expect of it. Any advice or thoughts would be welcome. As a newbie the unknown is always the worst!
Thanks,
Ben