Hi,
I am Shawn 34Yrs old, i live in India. I am recently diagnosed with CML (2-3 weeks back) and i am on Veenat 400 MG (Generic Version of Imatinib) once a day.
Initially I was 60K of WBC at the time of diagnosed, and it was jumping between 50 – 60K
I am completely freaked out and in a complete shock and stress. Not sure how to react for my CML.
I am in mind set of 5-6 Yrs of survival not sure whether I am correct or wrong. And don’t know what to do and how to react, after know about the CML I started getting more worried about my wife and kids and my anger is increased.
I don’t have any friends to share and moral support me.
Currently 2 weeks on Veenat, my WBC come down to 14K from 50K.
And the Blast cells in the Blood has been reduced to 6 from 10.
But I see lot of change after the Veenat, need to know is it normal
1. My legs and hands are paining almost every day and any time. Mostly on the Joints or near to the Joints. Some time it is like muscle pain and some time it is more like bone and Vein pain and this is giving me sleepless nights sometime
2. After Veenat I lost nearly 3 -4 Kg of weight in 2 weeks, even though I eat the same portion size as before
3. Due to leg and hand pain some time I feeling very tired and chilled
4. After every Meal I get the urge to go to toilet, the stool is normal not black or green and it is not watery or loose Diarrhea but the frequency is become more and most after the Dinner is sure
5. Some time I feel very hungry even after Big Meal (like after 1 or 2 Hrs)
6. My Sweat started stinking more and 1 sweat more in nights only on my head
Is this Symptoms are normal? Are these are side effects?
Please help me
Note: I am doing my WBC check almost every weeks and RBC 4.48, Hemoglobin is 13.1 and Platelets are 188.
I smoke 7-10 cigarette per day and occasional drinker (like 2 or 3 month once)