Hey again guys, I will introduce my self again. My name is Gudmundur and I am 29 yo from Iceland but currently living in DK with my girlfriend and 2yo daughter.
I had been on Gleevec and Tasigna for the past year and both I have been completely beaten down with side effects. Taking 100mg of Oxy per day to try to counter the side effects..
In the beginning of June she finally took me off Tasigna and two days later I started to feel so much better and "normal" again and able to cut down the Oxy and everything getting better.
Then middle of June came and the Philadelphia was back.. She put me on Sprycel because it was back and a week after that I am still feeling better and almost off the Oxy (difficult to quit oxy after 11 months on them, takes time). I was at the doctors today and it looks like it is not working and probably explains me feeling good... Now they have thrown out there the possibility of a transplant, the senior doctors are meeting today to talk about my case and review the options.
I just wanted to ask if anyone has gone through this and maybe I just need some encouraging words.
Thanks!