Up till now, I have shown a full molecular remission for several years have been on glivec for 13 years.
I was asked initially to stop given for 2 weeks, before I went for an operation due to concerns with lowered blood count and hemorrhage risk, by clinical surgeon.
After op they asked, I stay another 2 weeks off glivec. After the 2 weeks, I went back on it and was tested 3 weeks later for my 6 monthly bar abl test, which I now have been advised has shown a spike by my haematology consultant and I will get another bar abl test in a couple of weeks to check again, when I'm next at clinic.
i have noticed since being back on glivec, the side effects are more pronounced now than they were before I stopped it, as although I was tired I have managed to continue working full time.
Now I find, by afternoon I feel exhausted and have had other side effects like a dry mouth, which i never had before. I have also had some pains in joints again.
Has anyone else had a break from glivec and experienced worse side effects on resuming it?
Or is it just that it's doing its work again to lower my bar abl count and should settle in a month or two?