Hi All,
Just found this site after googling "Alcohol and Tasigna" :)
Seems like I probably shouldnt be drinking!! I was wondering if its ok to drink alcohol during the "fasting" period with Tasigna? Anyone got ideas?
I was diagnosed towards the end of June and as I was in EastAfrica finishing a contract at the time, I got back to Europe pretty quickly. I have been living out of a suitcase even since, moving around to various friends and pretty much coping with no support and no other patients to talk to. My 3 month BCR-ABL were sub optimal so i was moved from Imatanib to Tasigna and started this week.
There are clinical trials going on at my hospital for Tasigna augmented with Interferon, some patients were able to discontinue medication completely after a few years of this. I wasnt a good candidate for the trial as I move around too much and the study needed a 5 year follow up. Its taking place in Switzerland and Germany (the trial).
For those on Tasigna, I am finding the mobile app TasiTrack highly useful. Check it out on Google Play.
Finally,I kept a diary for the first 3 months, if folks are interested in patients story, let me know and I'll send you the link.
My white blood count was at 335,000 at diagonsis (platelets were 2.5M soon after), I'm curious how 'bad' this was compared to others at diagnosis? The docs all seemed to react rather strangely to the fact that I wasnt sick at that point (the blood test was a routine screen for malaria).
Eva