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I have found the cml support group invaluable. All the questions (including those I'd never thought of) and answers are there. It is so encouraging to know other people have similar experiences of living with cml, and the diagnosis is not the end of the world.
Diagnosis is a scary time, before your journey starts and these amazing drugs take effect. There is outdated, inaccurate information on the web. CML support was the place where I found a community of fellow patients, good information and advice, together with accurate helpful guidance and knowledge.
I was diagnosed in 1999, before the advent of TKI therapy but was fortunate enough to enter the Phase II trial of Imatinib. I set up CML Support in 2000 and the experience of helping other people has certainly helped me and my family cope with what is a lifelong diagnosis.