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Help CML Support by registering with AmazonSmile

David Fitz's picture
Submitted by David Fitz on Thu, 01/03/2018 - 3:54pm

Do you shop on Amazon UK?

Now you can help CML Support, who runs this web site, every time you order a new book, buy a present, or stock up on household items. Simply start your shopping experience at: http://smile.amazon.co.uk and select "Chronic Myeloid Leukaemia Support Group" as your preferred charity, and we will receive 0.5% of every purchase you make.

What is AmazonSmile and how does it work?

Top Vitamin D Research Papers- 2021

sandy craine's picture
Submitted by sandy craine on Wed, 23/02/2022 - 10:45am

The evidence that vitamin D has important health benefits continued to increase in 2021. In particular, the benefits in reducing risk of SARS-CoV-2 infection and COVID-19 became more robust, as did those for CVD. The evidence clearly points to the healthy range of 25(OH)D as being 30-40 ng/ml, with additional evidence for the optimal range being 40-60 ng/ml. Due to modern lifestyles, it is very difficult to achieve those levels from solar UVB exposure and diet. The most efficient way to raise serum 25(OH)D is to supplement with vitamin D3, of at least 5000 IU/d, and up to 10,000 IU/d.

Vit D -The story behind the Beginning of D*action

sandy craine's picture
Submitted by sandy craine on Fri, 01/10/2021 - 10:40am

What is D*action?

D*action started out as a 5 year (now on-going) public health project to provide education and research to SOLVE the vitamin D deficiency epidemic, by measuring vitamin D serum levels, collecting health data from participants, and tracking the health effects of getting to levels of 40-60 ng/ml (100-150 nmol/L).

Published by GrassrootsHealth Nutrient Research Institute

UK patients needed for "MyeloidScan" study – Long COVID in patients with myeloid blood cancers

David Fitz's picture
Submitted by David Fitz on Mon, 23/08/2021 - 1:48pm

MyeloidScan – Long COVID in patients with myeloid blood cancers

Have you had COVID 19 infection? We need to find out more about long covid affects people like you – can you help us?

We would like to share with you an opportunity to take part in a study to investigate the impact of COVID-19 infection in people with myeloid blood cancers.

What is the study for?

Join the COVID Symptom Study

David Fitz's picture
Submitted by David Fitz on Sat, 11/04/2020 - 1:35am

As the UK and the world see many more people test positive for COVID-19 You can help collect important data with this free symptom tracker by monitoring your day to day health and wellbeing.                                                                   &nbsp

iCMLf FAQ: CML, TKI treatment and COVID-19 disease-

sandy craine's picture
Submitted by sandy craine on Fri, 03/04/2020 - 2:59pm

It is important to note that the questions and answers below refer to chronic phase CML. Management of accelerated phase, blast crisis or post-transplant should be discussed in detail with the clinical team.

CML EHA SWG 29 MARCH 2020

CML, TKI treatment and COVID-19 disease
Dr Delphine Rea, Saint-Louis University Hospital, Paris, France and Professor Rudiger Hehlmann, ELN/EHA-SWG for CML

CML and COVID-19 case collection by iCMLf

David Fitz's picture
Submitted by David Fitz on Thu, 19/03/2020 - 8:30pm

iCMLf only want to hear from patients who have had COVID-19 confirmed by a laboratory test. If you have had symptoms consistent with COVID-19 but have not had it confirmed by a test, please do not get in touch with them and use their valuable time.

Note: CODVID-19 Virus request from International CML Foundation

CML and COVID-19 case collection

Guidance from iCMLf regarding COVID-19

David Fitz's picture
Submitted by David Fitz on Tue, 10/03/2020 - 3:22pm

THE NOVEL CORONAVIRUS AND THE COVID-19 DISEASE


INFORMATION FOR CHRONIC PHASE CHRONIC MYELOID LEUKEMIA PATIENTS

From cml-foundation.org

State of the Art as of 08 March 2020

Dr Michael Deininger (USA), Dr François Guilhot (France), Dr Jeroen Janssen (Netherlands), Dr Tim Hughes (Australia), Dr Jeffrey Lipton (Canada), Dr Franck Nicolini (France), Dr Jerry Radich (USA), Dr Delphine Rea (France), Dr Giuseppe Saglio (Italy), Dr Suzanne Saussele (Germany), Dr Rick Silver (USA), Dr Juan-Luis Steegmann (Spain)

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