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Newly diagnosed 16yr old

Hi. My name is Claudia and I am the mother of a 16yr old, Andres,  diagnosed on July 20th.  We suffered a severe crisis as his white blood cell count rose to 600,000u and it derived on other grave consequences that had us in intensive care for 11 days.  Luckily, my son overcome those  and we are now home on his 5th week with Glivec.  Platelets, hemoglobin and white blood cells are now in normal levels.  He is experiencing joint pain and what he describes as "bone pain".  These pains come and go.  Are they normal?  Also, how many weeks for Glivec to "settle" and work? How soon can we expect to have normal activities?   Thank you very much for any information you may provide.  All the best to all!

Hi Claudia,

As a mom my heart goes out to you. Many blessings to you and your son. Thank goodness for Glivec/Gleevec! I had bone pain and cramps for a while but Ibuprofen really helped. These happened to me during the transition from unhealthy blood counts to healthier now. My diagnosis was in April so I am a few months ahead of Andres. The pain and cramps only lasted a few weeks for me and they have almost completely gone. My sense is that everyone is a little different so it is hard to know how long this will last for him, but I hope it will pass quickly. I really just have fatigue and puffy eyes now and an occasional leg/foot cramp, but the doctor said to take calcium supplements and that seems to help.

All the best to Andres and you. It is a very bright future, hang in there!

Justine

 

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Newly diagnosed. Need advice