As mentioned in my first post I’ve been on Sprycel (100mg) since Jan 14 2018 after diagnosis in early Jan. I continue to struggle with managing the side effects and emotional aspects of the diagnosis. See summary below. Any tips / guidance would be much appreciated:
Blood CBC - Original: RBC 3.81 x 10^12 L, Hemoglobin 120 g/L, WBC 127 x 10^9 L, Platelets 674 x 10^9 L, Abs Neutophil 86.79 x 10^9 L
Original BCR/ABL1 P210 IS: 35.4828 %IS
Spleen Enlargement: No evidence
Blood CBC - Current: RBC 3.64 x 10^12 L, Hemoglobin 113 g/L, WBC 3.25 x 10^9 L, Platelets 183 x 10^9 L, Abs Neutophil 1.80 x 10^9 L
Ongoing Side-effects
- constipation (currently taking milk of magnesia and stool softener - docqlace)
- chest pain and rapidheart beat (up to 120 bpm at times) - no evidence of trauma / issues / damage from EKG, echo, event monitor readings but I feel dizzy when I stand, feel my heart pumping and experience chest discomfort - everyone tells me it’s stress/anxiety
- overall anxiety regarding diagnosis: I am not optimistic at all about my prognosis and am concerned about life expectancy with CML (I’m only 39).
- BMT - I inquired about HLA typing with my siblings (we are located all over the world) in the event that a bmt is needed down the line but my doctor wouldn’t support a requisition at this time given my progress so far - has anyone else coordinated overseas HLA typing independently??