hello everyone
Ive just joined in the hope of getting some advice as I'm at my wits end looking on the internet.
I don't really understand all the jargon and numbers but I will try my best.
I was diagnosed with CML in January 2016 and put on 400g imatininb in March 2016
I had blood test and hospital appointment every 3 months.
I went in knew the basics and every time was told thing were ok so had faith in my Doctors. The goal being to get me to 0% or below, which I assume was cytogenetic remission in 18 months which would have been October 2017.
In October 2017 my count was 1.002 not where they wanted it but it was going down. It had been sent to a different Lab so this n might be why ?
In January 2018 my blood test was messed up and I had to have another so a I didn't get the result.
I went to see the consultant last Tuesday 24th April (3 monthly) to be told my count in January had gone up to 1.728 and I had a relapse.
They were changing my TKI to Dasatinib. which I am to start in 2 weeks to give the Imatinib time to flush out my body. they could find no mutations so it was fingers crossed that Dasatinib would work.
I have not yet had my Blood result for April 16th as of yet.
Has anyone else had an experience like this, and what should I now be expecting from my CML and my Doctors ?
Thanks in advance for any help
Paul