Hi every one, hope you are fine in these difficult days... I wanted to share some news and need advices according to what happened to me last days.
One month ago, when I switched on new sprycel box, I began to have severe side effects such as big reflux, gastro problems, and above all huge back, neck, shoulder and arms from both sides pains which avoided me to move.
I had no pain remission at the point that even lied on my bed or on sofa, I was suffering on a scale of 9/10 and I thought that there was a big problem with my cml.
The pain was so important that is was nearly at the level of my aches on my diagnosis where I couldn’t move due to extreme pains to my neck and my back, certainly explained by my high level of white cell (approx. 500 000).
I had changed of sprycel box on last Saturday and since Monday I suffer half percent lower than previous week so I am nearly sure that the composition of sprycel change from box to box.
Even if I still suffer from joint, muscle and bone pains, it is much more comfortable and “livable” than previous month. The new thing on this box is pounding heart and difficulty to sleep because of accelerated heart beats.
I have asked my oncologist, she is dubitative and explains this by hyperactive bone morrow and hypersensitivity to tkis therapy, known among 15% percent of patients.
Tough life for me, I am only 34 years old and feel twice my age.
Any advice greatly appreciated.
Cheers for us and for all,
Frenchguy