I've had cml for 8 years and been in remisson on glivec for about 7 years. Feb 11 I changed to Nilotinib due to side effects. My last pcr was about 0.013 feb 12.
I saw my local haematologist 2 weeks ago and were discussing reducing the dose due to side effect.but he had to do another blood test first. Last Wednesday I came home and a letter was from the hospital for me to come in the next day. when I was due to go back in July.
All the emotions of that day when your told you have cancer came flooding back. Unfortunately I handled the situ rather badly and never made the appointment.
I'm now due to go back next Thursday. feel slightly more reassured that they didn't pull me in yesterday.
I'm not ill at the moment I feel fine. No one around me understands quite how I'm feeling.I just don't want to deal with it. I just want it to go
I had to stay in hospital and on the discharge sheet it reported that my WBC was high at 16