You are here

1 year with CML

I am now on 50 mg Sprycel and still have low platelets (15) should be 140-450 and hemogobine 5,4 (should be 8-12). If the counts are still low on fridayI will get a bloodtransfusion. Wbc still stable. Hope this will be the lowest point for me, but I do not have a lot of faith in it. I am very tired and not able to work (which I miss very much). But I had orders to rest from my doctor. In the last month, I have seen a cml specialist and she said there were no mutations, spleen has normal size and there should not be any reasons to stop the sprycel from working. Sadly I also heard that my 2 loving sisters are no match, so I hope the transplant will not be needed. It is wise to take less than 50 mg Sprycel, has any off you have expierience with this???

Gr. from Holland Jolanda

Are you all looking forward for the marriage of you Prince??? I am als going to see the event on the TV.

Return to thread