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Headaches - Please help!

Hannah,

I think if you feel you are not being listened to then you should follow your instinct and ask for a referral... maybe to Bristol and the clinician that Chris has recommended. As there are 5 TKIs including imatinib and nilotinib then I don't see why you should suffer such debilitating side effects.  As for trying an alternative therapist for your migraine headaches then take a look at the following link for info about a therapist in your area. 

Acupinture: http://www.therapy-directory.org.uk/search.php?search=Gloucestershire

Homeopathy: http://www.therapy-directory.org.uk/search.php?search=Gloucestershire&se...

I am afraid that you may well have to pay as the NHS does not really support alternative forms of medicine. There are a couple of homeopathic hospitals in the UK but they are constantly under threat of losing NHS funding. 

If you scroll down on the site I link to above then you may find therapists who have a sliding scale of fees depending on what you can afford. Personally I only needed 4 sessions of Acupuncture to sort our my migraine problem so as that was many years ago I reckon I got my moneys worth! But seriously, do ask for a referral to a CML specialist centre  - I am not sure Gloucester is on that list - and you really could do with seeing someone who is used to treating CML. 

Hope this is helpful, you should not be suffering such side effects just to please your doctors. You really need to ask for your PCR test results - 

Sandy

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