Over the past 18 months I have suffered a broken humerus, a cracked rib and now a wedge fracture to a vertebra. (No, I'm not into extreme sport). I have just been diagnosed with Low Grade osteoporosis ( not surprisingly) . Earlier, suspecting osteoporosis,I asked my haematologist if Imatinib could cause this so he did some research and found that Imatinib has been put forward as a "possible potential medication to reverse osteoporosis" so it looks as if I'm on the right drug. I am still waiting for an appt with my GP for a prescription probably for calcium and Vit D. I had a Dexoscan last week and the physio doing it told me the results.
I am wondering if CML can contribute to osteoporosis as both my GP and the scanner physio think so. I haven't asked my haematologist yet as I don;t have an clinic appt till end of May so thought I'd ask for other patients' thoughts on this.
Also, does anyone know if calcium +Vit D supplements are OK to take with CML. My GP worried that maybe not - but as I am the only patient in this area with it she isn't sure - just saw the word "myeloid" and told me she didn't think I could take the supplement. I am loathe to take anything after my experience with Imatinib and statins which gave me severe foot pain for 2 years before I realised what was causing it, but equally I feel I have to do what I can to protect my bones..
Hope everyone is well. My PCRs have been at their lowest ever for the past 9 months so I will be reducing my dose of Wockardt Imatinib to 300mgs from the standard 400mgs if I continue to hold MR4 till the summer.
Best to everyone