You are here

Teens with cml

Hi. 

My fourteen year old daughter has recently been diagnosed with chronic myeloid leukaemia and has been started on imatinib. Been told that it is incredibly rare in young people. Wondered if anyone one this site is going though the same thing with their teenager and how they are getting on.

Sally x

Hi,

It is rare in young people - pretty rare disease in adults too (1 per 100,000). You may want to take a look at the Children with CML group on facebook. At least you can then talk to other parents who are experienced with TKI therapy in children.

There are two groups as far as I know:

https://www.facebook.com/groups/471915522842116/?fref=ts   and   

https://www.facebook.com/groups/207664421574/

Sandy