My husband Tim (46) was diagnosed with CML September 2017 on a chance blood test for a completely unrelated issue. To say we were shocked is an understatement. 3 months later we understand more but sometimes you feel like your drowning. We are so thankful for the TKI he is on, the projected outcome but right now is really really hard. He has been hospitalized 3 times now with UTI and kidney infections and we are 3 1/2 hours from the nearest hospital that can do bloodwork. I am incredibly fortunate to have friends to take over our kids when we are gone.
We are all tired, especially Tim. I feel guilty when I say I'm tired when I have no idea what he is feeling. We cry, laugh a lot but this has driven our family even closer than ever before. Our two kids Neil,11 and Jane, 10 have taken this really well but are obviously concerned and very upset every time Tim is airlifted up to Glasgow.
We have just now started really looking at this site as we have just been too tired and overwhelmed to take on anymore right now. Just looking at 6 testimonies on logging in has encouraged us immensely! We look forward to meeting some of you, learning and sharing. His blood counts are really low right now, boardline neutropenic but finally he said last week he feels like he has a bit more energy.
Thanks for reading and listening. It is nice to know we can directly talk to people who actually have CML, or family/friends that are going through it.
Michelle